Rosie & Jim have donated €5000 to DEBRA Ireland.
This is EB Awareness Week 2022.
Many people living with EB are struggling to get the support they desperately need, and a lack of funding and a shortage of nurses are leaving some families without reliable and consistent nursing care at home.
Join the fight for EB care and add your name to call on the Minister for Health to invest in EB care now - debraireland.org/ebaw
Nursing care is essential to protect the health and wellbeing of children and adults with more severe forms of EB.
These nurses manage and assess wounds at home and are vital to helping prevent dangerous infections.
No parent should be forced to provide this complex care themselves due to a lack of resources.
Bandage changes involve intense physical pain, making it particularly difficult and emotionally draining for parents and loved ones.
Add your name to call on the Minister for Health to invest in EB care now.
Find Out More on the Debra Ireland Website - https://debraireland.org/ebaw/
* What is EB?
Epidermolysis bullosa (EB) is a rare genetic condition that makes your skin so fragile that even a gentle touch can cause blistering and open wounds. Children and adults living with more severe forms of EB have to wear bandages across most of their body to protect their skin and prevent infection. These bandages and the wounds they protect need to be carefully looked after, with most people needing a full bandage change at home at least three times each week. Bandage changes are a painful procedure during which blisters are burst and drained, ointments are applied, and the skin is wrapped in up to three layers of dressing.
