Rosie & Jim are delighted to donate €300 to the Wild Atlantic Wains ChildrenHelpingChildren Concert. The concert is a fundraiser for A Better Life for Livie Fund.
Find out more about Livie and the many fundraising events here: https://www.abetterlifeforlivie.ie/
Also check out A better life for Livie on Facebook and all the social platforms. She needs as many heroes as possible to save her. Imagine if just 1 euro per view went to the fund, we could really make a difference.
Who Is Livie ?
Olivia Mulhern is an 8 month old baby recently diagnosed with Spinal Muscular Atrophy (SMA) Type 1. Without treatment her condition will deteriorate and it will be unlikely she could survive past her second birthday.
What Is SMA ?
Spinal Muscular Atrophy (SMA) is caused by a gene deletion that causes deterioration of the nerve cells connecting Livies' brain and spinal cord to her muscles. There is no cure and Livie has the most severe type.
Livies best hope is a one off gene treatment, currently only available in America and costing a staggering two million dollars. Livie is against the clock as this treatment is only available to children under two years old.